Your voice. Your research. Your future.

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Four part webinar series

Providing people with lived experience of SCI foundation knowledge about research

This webinar series will focus on two key areas. The first is to provide people with lived experience of SCI and their family members foundation knowledge about research. This will include how research works, how to access information about upcoming research, and information about how to participate in the research cycle. The second is to increase awareness of the value of consumer engagement to researchers and the research community. This will include providing strategies for incorporating consumer engagement into practice.

Join our mailing list to hear more about our consumer engagement activities

The Consumer Engagement Program is supported by our major partner, the IOOF Foundation.

This series was made possible through the support of the John T Reid Charitable Trusts with assistance from The Marian and E.H. Flack Trust.

Webinar 4: 9 Aug 2022

Engaging consumers in research: A researcher’s perspective

In our final webinar, we’ll introduce a framework for researchers to involve consumers in research practice.

We’ll discuss ways to identify appropriate consumers and engage them during the research process.

This webinar will be co-facilitated by PhD candidate and published researcher Leanne Rees.

Leanne Rees

Watch previous webinars as short videos below

Episode 1

What is research?

In this episode, we talk about the basics of what research is and how it works. We also run through an example so you can see the concepts in context. (26 minutes)

Episode 2

History of SCI research

In this episode, Antonio looks at key moments in the history of SCI research, and explains the difference between medical and social research. (8 minutes)

Episode 3

Impacts and benefits of SCI research

In this episode, we talk about the impact SCI research has had historically, and explore the various stakeholder groups that have benefited. (12 minutes)

Episode 4

Question & Answer (Session 1)

This Question & Answer session follows episodes one to three in this series. The questions were asked by audience members live during the webinar. (12 minutes)

Episode 5

The research cycle

In this episode weexplain the research cycle – what it is and why it is important. We point out that consumers have traditionally only been involved in one part of this cycle. (6 minutes)

Episode 6

Who are SCI consumers?

What do we mean when we use the term ‘consumers’ when we talk about Spinal Cord Injury research? Who is covered by this term? (8 minutes)

Episode 7

Engaging consumers in research

This episode discusses the ways in which consumers can get involved in research, not just as subjects, but in all parts of the research cycle. (30 minutes)

Episode 8

Question & Answer (Session two)

This Question & Answer session follows episodes 5, 6 and 7 in this series. The questions were asked by audience members live during the webinar. (13 minutes)

Episode 9

Chat with Dr Annie Palermo

Antonio chats with Dr Annie Palermo, a Postdoctoral Fellow at NeuRA, about her research in balance and respiration after spinal cord injury. (16 minutes)

Episode 10

Chat with Dr Marnie Graco

Antonio chats with Dr Marnie Graco, a Researcher/Scientist at Austin Health, about her research in sleep apnoea and sleep-disordered breathing after spinal cord injury. (20  minutes)

Episode 11

Chat with Dr Ali Lakhani

Antonio chats with Dr Ali Lakhani, a Senior Lecturer at La Trobe University, about his research on how consumers engage with community disability services and community spaces. (16 minutes)

Episode 12

Question & Answer (Session three)

This Question & Answer session follows episodes 9, 10 and 11 in this series. Dr Palermo and Dr Lakhani answer Antonio’s questions. (8 minutes)

Clinical Trials

If you have a spinal cord injury there may be clinical trials that you can participate in.
To find out more about clinical trials, visit these websites.

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